- How was I selected?
You were selected because you had a baby between March and November 2022 (congratulations!), and your information was drawn from records from the Early Hearing Detection and Intervention (EDHI) program to recruit eligible participants. The participant population includes all resident Henderson and Polk County families giving birth between March 1, 2022 and November 30, 2022. Using the contact information in the hearing screens, recruitment will be completed through letters and phone calls.
If we don’t hear back from families through virtual recruitment, recruitment may also be conducted door-to-door through in-person home visits.
- Are there any risks?
There are no physical risks of being in this research. There is, however, the potential risk of loss of confidentiality. Every effort will be made to keep your information confidential, however, this cannot be guaranteed. Any study records that identify you will be kept confidential as required by law. We have applied for a Certificate of Confidentiality from the Federal government. This means that the information we have about you is protected. No one can use the courts or any other system to get the information from us. Except when required by law, neither you nor your child will be identified by name, social security number, address, telephone number, or any other direct personal identifier in study records disclosed outside of Duke University. All information will be stored on a secure drive that can only be accessed by researchers directly associated with the study. In all papers and in our records, your information will be recorded under a unique ID number as opposed to your name. Some of the questions we will ask you as part of this study may make you feel uncomfortable. You may refuse to answer any question and you may take a break at any time during the survey. You may stop participation at any time. You are always free to ask questions of any Duke University staff member.
- Are there any benefits?
Your participation in this study will give you an opportunity to reflect on your family’s circumstances and experiences and on your child’s health and development. Your participation also will help us to understand the family characteristics and family services that affect child health and development, parent well-being, and parenting behaviors. With your help, we can better understand how to develop programs that deliver effective, personalized care to support family health and well-being.
- Does the survey have to be conducted in my home? How long will the survey take to complete?
Nope! The survey may be completed by phone or online, depending on your preference. Participation in this study involves completing one survey which will take approximately 30-45 minutes.
- Can my spouse/partner/nanny complete the survey on my behalf and/or be present during the survey?
While your spouse/partner or another family member might have a lot of interaction with your child we would really like to get your input and opinion for our survey.
- Is your staff able to help me fill out additional, unrelated paperwork (i.e., medical or government aid paperwork) at the end of the survey?
Unfortunately, our staff is not able to help families with any paperwork that is not involved with the survey.
- I plan on moving soon- am I still eligible to participate?
Yes, if you are currently living in Henderson or Polk counties, you are eligible to complete the survey regardless of when you plan to move.
- Who will be conducting the study?
The study will be conducted by Dr. W. Benjamin Goodman and researchers at the Center for Child and Family Policy at Duke University. The North Carolina Partnership for Children is paying Duke University for this study to be completed.
