Connecting Newborns to Case Management Services
Understanding where newborns with sickle cell disease (SCD) are located and connecting them to local resources are essential to improving the wellbeing of all people living with SCD.
Growing up with Sickle Cell Disease
Featuring CJ Summers’s story with transitioning from pediatric to adult care and how support from his mother and community resources helped him navigate the transition process.
This paper will focus on people with sickle cell disease who have more than 20 emergency department visits in a year to better understand their utilization pattern over time and the factors associated with their high utilization of emergency department services.
Population-level data on sickle cell disease (SCD) are sparse in the United States. The Centers for Disease Control and Prevention (CDC) is addressing the need for SCD surveillance through state-level Sickle Cell Data Collection Programs (SCDC). The SCDC developed a pilot common informatics infrastructure to standardize processes across states.
This report analyzed state newborn screening program records from 2016–2020 from 11 SCDC program states to provide updated crude and race-specific SCD prevalence among newborns and to describe the percentage of newborns with SCD by county-level socioeconomic characteristics among these states.
This study examine patterns of Medicaid coverage among children with SCD in the first 3 years of life, a critical period to improve access to high-quality pediatric care.
Disclosure
The findings and conclusions in this presentation are those of the authors and do not necessarily represent the views of the North Carolina Department of Health and Human Services, Division of Public Health.
