The Fight for Mental Health Support in China's Marginalized Communities

By Jingchen Ye

The Fight for Mental Health Support in China’s Marginalized Communities

By Jingchen Ye

Zhoushi Town, Kunshan – In a small, cramped but tidy home, Tinglan Gao, a man in his late 70s, nervously clasped his hands together, his face twitching slightly as he welcomed visitors from the local community mental health program. As a patient with panic disorder, Gao’s story is one of quiet endurance in the face of mental illness and financial struggles. It’s also one of many in a society that only has roughly 44,000 professional psychiatrists in a country that may have as many as 170 million people affected by various mental disorders and psychological struggles.

Huiqiao Yuan, right, recording patients’ physical conditions and some special needs. Photo: Minghua Geng

Gao’s story is just one of millions of stories of people in China grappling with mental health challenges. According to the Lancet, a prestigious medical journal, about 173 million people in China were suffering from various mental illnesses in 2015, of which 91.4 percent had never received professional treatment. Anecdotal evidence from the pandemic and economic downturns since that time suggests that that number almost certainly has grown since then.

According to the World Health Organization, worldwide, 7%-10% of the elderly suffer from depression, and the incidence of depression among the elderly suffering from physical diseases is as high as 50%. Based on data released by the Mental Health Center of the Chinese Center for Disease Control and Prevention in 2009, at that time, more than 100 million people in China suffered from various types of mental illnesses, among which the prevalence rate of mental disorders among adults was 17.5%, and the number of severe mental patients had exceeded 16 million. In the local area, the survey found that one out of every five people in Shanghai had suffered from at least one mental illness or behavioral problem in their lifetime, and an average of one out of every eight people was suffering from some kind of mental or behavioral problem.

In communities like Kunshan’s Zhoushi Town, efforts are being made to address these challenges. A local initiative begun in 2021, the Zhoushi Mental Disorder Community Rehabilitation Service Project, aims to bring patients with different mental health issues some basic medical supplies and ask them basic questions to understand their health status. At the early stages, with the assistance of the local health services center, volunteers are trained by local workers in how to ask about patients’ physical conditions and other needs during the visit. Volunteers are also trained in how to educate the public about mental health rehabilitation.

To give mental health support to China’s marginalized communities, volunteers from Duke Kunshan University like Huiqiao Yuan and Minghua Geng have participated in the program since August 2024, offering psychological support and creating opportunities for patients to engage socially in their neighborhoods.

“It pains me to see how hard life is for so many people,” Geng says, forcing a smile. “We visited families that are no different from us – they have their own happiness, but also have their own difficulties. They are actually ordinary families. Maybe they need some help right now, but they’re doing their best to fight against the disease. I hope our service can bring them some warmth.”

Minghua Geng, left, completing a questionnaire and bringing some medical and daily necessities from the service center to a family. Photo: Huiqiao Yuan

On the morning of November 22, 2024, Yuan, as a volunteer, followed the footsteps of community worker Ping Lu and knocked on Gao’s door. There were very few furnishings in the home, except for the necessities of life. It looked like they had been in use for a long time, but things were arranged very neatly. It took a while before Gao opened the door and, leaning his head out, he looked warily at the visitors. After entering the house, Gao pulled out a stool and asked visitors to sit down, his whole face starting to tremble slightly. The corners of his mouth were turned down, his eyes did not know where to look, and his two hands were tightly clasped together.

“Don’t be nervous – we are here to help you,” Yuan said, starting the interview.

Volunteers’ questions for community members typically include asking about the patient’s medication status, physical condition, diet, sleep quality, and other questions designed to get a sense of their physical well-being. They also try to draw a picture of psychological well-being, and include questions on recent family life; whether patients get along well with family; and the needs of the patient – whether they have encountered any difficulties recently, and whether they need any kind of help. After collecting the relevant information, the community workers will report the problems or needs of the patients to the government to raise the attention of society, volunteer workers say.

An example of the questionnaire used by volunteers in the program.

Through conversation, Yuan learned about Gao having trouble sleeping every night – and that he was often in pain during the daytime. His wife and children are actually alive, but do not want to live with him because his family does not think he is normal, and worry that his illness will drag down the whole family. Although his wife would occasionally come over to cook him a meal, her stays were always short.

Gao himself is aware that he does not fit well into society. Additionally, for individuals like him, who lack strong family and financial support, the burden can be overwhelming. “I don’t want anything else,” he said during the visit. “I just hope for discounts on my medication. Most of my family’s money has gone to buying medicine.”

Another family living in the same community has a seven-year-old girl who has been diagnosed with depression. She spends her days locked in her room. Yuan, the volunteer, did not meet the young girl with depression in person, but met her father, Jianle Gu. Her father, mother and their grandparents live in a house of less than 70 square meters. When Yuan entered the house, five people were having lunch around a small table; a pot of water-soaked rice, a pot of green vegetables, and a small bowl of pickles was all the food they had to eat. Her family expressed being overwhelmed by financial stress and frustration.

“We are very short of money, particularly, [insurance] policies have changed, and the monthly financial subsidy [due to the patient having]  no serious illness has been reduced a lot,” Jianle Gu said. “If you can provide financial aid, that would greatly help.”

China has made strides in expanding mental health care, but the financial burdens remain a critical obstacle for families dealing with relatives in need of constant treatment. Medication costs can consume a significant portion of a family’s income, particularly for low-income households without robust social support. As reported in Psychology Today, drug costs can account for 15% to 25% of a low-income family’s annual income in China.

In part to address such issues, the China Disabled Persons’ Federation, a renowned organization that assists people with disabilities, has also promoted a 2023 “jingkang” initiative in recent years, to raise awareness among the public to not neglect those with mental health disabilities.

In addition, many mental rehabilitation service centers have been set up in China under the policy. Despite the government’s push, there are shortages of professionals in the field. According to a comprehensive report in the Lancet published in 2023 on the mental health workforce in China, the country has doubled the number of fully-qualified professional psychiatrists over the last 10 or 15 years – but that still means only roughly 44,000 psychiatrists for the entire nation. Further efforts to assist lie in programs like community rehabilitation, which relies on alternative models, such as “task sharing,” where trained laypersons help deliver services. Moreover, in remote and economically underdeveloped areas, there are still few to no mental health professionals, and nearly 70 percent of county-level districts have no psychiatric medical teams.

Using the “singing bowl” for music relaxation training to aid patients. Photo: by local worker

Minghua Geng, the DKU student volunteer, asked the workers of Zhoushi Mental Disorder Community Rehabilitation Service Project what they would like to do in the future.

“We would like to use an ecosystem approach, working with individuals, families, and the community,” said Ping Lu. “Our goal is to reduce stigma, promote acceptance, and provide emotional relief to both patients and their caregivers.”

Some experts also emphasize that addressing these challenges requires a sustained effort. Dr. Li Wei, a mental health researcher at Shandong Second Medical University, highlighted the urgent need for systemic change in an article in Chinese General Practice, one of the most authoritative journals of medicine in China, in a piece about influencing factors of chronic disease management in the elderly. She emphasized that “subsidizing medication costs, improving public education to reduce stigma, and expanding long-term counseling services are crucial steps.”

According to her research, without these measures, the cycle of isolation and despair experienced by elderly individuals with chronic diseases will persist.

Exercise routine training for patients. Photo provided by volunteers.

Jingchen Ye

Jingchen Ye is a UG student from class of 2027. Her intended major is Computation and Design in the track of Computer Science. She is interested in the field of human-computer interaction and the mental health of marginalized groups.

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