Skip to content

Articles

Review recent journal articles, commentaries, position papers, and other scholarly publications on modern health care in African American and other minority communities

Topics

Bioethics
Caregiving
Health Disparities
Medical Ethics
Miracles
Mixed Methodologies
Quality-of-Life
Racial Inequities
Social Determinants of Health
Structural Racism in Health Care

2022

Addressing Anti-Black Racism in Bioethics: Responding to the Call

Fletcher, Faith E., Ray, Keisha S., Brown, Virginia A., and Smith, Patrick T., “Addressing Anti-Black Racism in Bioethics: Responding to the Call,” in A Critical Moment in Bioethics: Reckoning with Anti-Black Racism through Intergenerational Dialogue, ed. Fletcher, Faith E. et al., special report, Hastings Center Report 52, no. 2 (2022 Apr): S3– S11.
– AA ACP/PC Network Member Contributing Authors
Patrick Smith, PhD, MDiv, MA

A Mixed-Methods Formative Evaluation of a Dementia Friendly Congregation Program for Black Churches

Gore J, Toliver J, Moore MA, Aycock D, Epps F. A Mixed-Methods Formative Evaluation of a Dementia-Friendly Congregation Program for Black Churches. Int J Environ Res Public Health. 2022 Apr 8;19(8):4498. doi: 10.3390/ijerph19084498. PMID: 35457369; PMCID: PMC9028238.
– AA ACP/PC Network Member Contributing Authors
Fayron Epps, PhD, MSN, RN

A National Survey of Social Workers Focusing on Attitudes, Knowledge, and Practice Behaviors for Educating Patients About Advance Directives: Implication During COVID19.

Nedjat-Haiem FR, Cadet TJ, Parada H Jr, Mishra SI, Bullock K. A National Survey of Social Workers Focusing on Attitudes, Knowledge, and Practice Behaviors for Educating Patients About Advance Directives: Implication During COVID19. Am J Hosp Palliat Care. 2022 Jun;39(6):737-744. doi: 10.1177/10499091211038503. Epub 2021 Aug 19. PMID: 34409873; PMCID: PMC8857289.
– AA ACP/PC Network Member Contributing Authors
Karen Bullock, PhD, MSW

Anxiety, Depression, Quality-of-Life, Caregiver Burden, and Perception of Caregiver-Centered Community among Black and White Hospice Family Caregivers

Starr LT, Bullock K, Washington K, Aryal S, Parker Oliver D, Demiris G. Anxiety, Depression, Quality of Life, Caregiver Burden, and Perceptions of Caregiver-Centered Communication among Black and White Hospice Family Caregivers. J Palliat Med. 2022 Apr;25(4):596-605. doi: 10.1089/jpm.2021.0302. Epub 2021 Nov 18. PMID: 34793244; PMCID: PMC8982115.
– AA ACP/PC Network Member Contributing Authors
Karen Bullock, PhD, MSW

Drivers of Racial-Ethnic Differences in Perceived End‐of‐Life Care Quality: More Questions than Answers

Bullock K, Makaroun LK. Drivers of racial/ethnic differences in perceived end-of-life care quality: More questions than answers. J Am Geriatr Soc. 2022 Apr;70(4):1057-1059. doi: 10.1111/jgs.17663. Epub 2022 Feb 28. PMID: 35226353.
– AA ACP/PC Network Member Contributing Authors
Karen Bullock, PhD, MSW

Experiences of Black American Dementia Caregivers During the Covid-19 Pandemic

Oliver S, Alexander K, Bennett SG, Hepburn K, Henry J, Clevenger CK, Epps F. Experiences of Black American Dementia Caregivers During the COVID-19 Pandemic. J Fam Nurs. 2022 Aug;28(3):195-204. doi: 10.1177/10748407221102465. Epub 2022 Jun 8. PMID: 35674329; PMCID: PMC9280120.
– AA ACP/PC Network Member Contributing Authors
Fayron Epps, PhD, MSN, RN

Healthy Ties: Reflections on the Virtue of Solidarity in Medicine

Smith P. Healthy Ties: Reflections on the Virtue of Solidarity in Medicine.  University of Notre Dame Center for Social Concerns. 2022. Virtues and Vocations Magazine.
– AA ACP/PC Network Member Contributing Authors
Patrick Smith, PhD, MDiv, MA

Race Roundtable Series: Structural Racism in Palliative Care

Bullock K, Gray TF, Tucker R, Quest TE. Race Roundtable Series: Structural Racism in Palliative Care. J Pain Symptom Manage. 2022 May;63(5):e455-e459. doi: 10.1016/j.jpainsymman.2022.01.015. Epub 2022 Feb 11. PMID: 35157982.
– AA ACP/PC Network Member Contributing Authors
Karen Bullock, PhD, MSW
Tammie Quest, MD

Respecting Faith, Hope, and Miracles in African American Christian Patients at End-of-Life: Moving from Labeling Goals of Care as “Aggressive” to Providing Equitable Goal-Concordant Care

Gazaway S, Chuang E, Thompson M, White-Hammond G, Elk R. Respecting Faith, Hope, and Miracles in African American Christian Patients at End-of-Life: Moving from Labeling Goals of Care as “Aggressive” to Providing Equitable Goal-Concordant Care. J Racial Ethn Health Disparities. 2022 Aug 10. doi: 10.1007/s40615-022-01385-5. Epub ahead of print. PMID: 35947300.
– AA ACP/PC Network Member Contributing Authors
Ronit Elk, PhD
Moneka Thompson, MDiv, MA, MS, BCC
Gloria White-Hammond, MD, MDiv

Spirituality in Serious Illness and Health

Balboni TA, VanderWeele TJ, Doan-Soares SD, Long KNG, Ferrell BR, Fitchett G, Koenig HG, Bain PA, Puchalski C, Steinhauser KE, Sulmasy DP, Koh HK. Spirituality in Serious Illness and Health. JAMA. 2022 Jul 12;328(2):184-197. doi: 10.1001/jama.2022.11086. Erratum in: JAMA. 2022 Aug 23;328(8):780. PMID: 35819420. 

Top 10 Tips Palliative Care Clinicians Should Know About Delivering Antiracist Care to Black Americans

Katie Fitzgerald Jones, Esther Laury, Justin J. Sanders, Lauren T. Starr, William E. Rosa, Staja Q. Booker, Melissa Wachterman, Christopher A. Jones, Susan Hickman, Jessica S. Merlin, and Salimah H. Meghani. Top 10 Tips Palliative Care Clinicians Should Know About Delivering Antiracist Care to Black Americans. J. Palliat Med. 2022 25:3, 479-487. doi: 10.1089/jpm.2021.0502.
—– RESPONSE —–

Letter to the Editor: Response to Fitzgerald Jones et al., Top Ten Tips Palliative Care Clinicians Should Know About Delivering Antiracist Care to Black Americans

Curseen, K, Bullock, K. Letter to the Editor: Response to Fitzgerald Jones et al., Top Ten Tips Palliative Care Clinicians Should Know About Delivering Antiracist Care to Black Americans. J. Palliat Med. 2022; 25:3, 345-346. doi: 10.1089/jpm.2021.05021.
– AA ACP/PC Network Member Contributing Authors
Karen Bullock, PhD, MSW

2021

Disparities and Racism Experienced Among Older African Americans Nearing End of Life

Aaron SP, Gazaway SB, Harrell ER, Elk R. Disparities and Racism Experienced Among Older African Americans Nearing End of Life. Curr Geriatr Rep. 2021;10(4):157-166. doi: 10.1007/s13670-021-00366-6. Epub 2021 Dec 14. PMID: 34956825; PMCID: PMC8685164.
– AA ACP/PC Network Member Contributing Authors
Siobhan Aaron, PhD, MSN, MBA, RN
Ronit Elk, PhD

Engaging Social Justice Methods to Create Palliative Care Programs that Reflect the Cultural Values of African American Patients with Serious Illness and Their Families: A Path Towards Health Equity

Elk R, Gazaway S. Engaging Social Justice Methods to Create Palliative Care Programs That Reflect the Cultural Values of African American Patients with Serious Illness and Their Families: A Path Towards Health Equity. J Law Med Ethics. 2021;49(2):222-230. doi: 10.1017/jme.2021.32. PMID: 34924058.
– AA ACP/PC Network Member Contributing Authors
Ronit Elk, PhD

2020

Diversity Advisory Council Position Paper: Covid-19 and Supporting Black Communities and the End of Life

McCann-Davis N, Weiss T, Deese D, Harper B, Duncan R, Gonzalez B, Hasan M, King B, Lillard-Green A, Stokes S.  Diversity Advisory Council Position Paper: Covid-19 and Supporting Black Communities and the End of Life. National Hospice and Palliative Care Organization.  2020 Aug.
– AA ACP/PC Network Member Contributing Authors
Diane Deese, MCLSS-GB, CACPFI, EMT
Marisette B. Hasan, BSN, RN

Missing the Mark: The Complexity of African American Dementia Family Caregiving

Brewster GS, Bonds K, McLennon S, Moss KO, Epps F, Lopez RP. Missing the Mark: The Complexity of African American Dementia Family Caregiving. J Fam Nurs. 2020 Nov;26(4):294-301. doi: 10.1177/1074840720945329. Epub 2020 Aug 6. PMID: 32757815; PMCID: PMC7721986.
– AA ACP/PC Network Member Contributing Authors
Fayron Epps, PhD, MSN, RN
Karen Moss, PhD, MSN, RN

2018

Culture and Palliative Care Preferences, Communication, Meaning, and Mutual Decision Making

Cindy L. Cain, Antonella Surbone, Ronit Elk, Marjorie Kagawa-Singer, Culture and Palliative Care: Preferences, Communication, Meaning, and Mutual Decision Making, J Pain Symptom Manage, Volume 55, Issue 5, 2018, pgs. 1408-1419, https://doi.org/10.1016/j.jpainsymman.2018.01.007.
– AA ACP/PC Network Member Contributing Authors
Ronit Elk, PhD

2014

AMEN in Challenging Conversations: Bridging the Gaps Between Faith, Hope, and Medicine

Cooper RS, Ferguson A, Bodurtha JN, Smith TJ. AMEN in challenging conversations: bridging the gaps between faith, hope, and medicine. J Oncol Pract. 2014 Jul;10(4):e191-5. doi: 10.1200/JOP.2014.001375. Epub 2014 May 6. PMID: 24803663; PMCID: PMC4870587.

Sites@Duke Express is powered by WordPress. Read the Sites@Duke Express policies and FAQs, or request help.