• Pre – Administration: The research assistant (RA) or designated staff member (e.g., study coordinator) ensures that the caregiver is equipped with all the materials and know-how required to administer the S2K at home. This includes sending the link and password that allows the caregiver to access the app on their home device, holding a live instructional session over Zoom to teach the caregiver how to use the app, and emailing instructional materials.
• Administration: The RA or designated staff member is available at reasonable hours over text, phone, and email to assist the family in troubleshooting any issues that arise during the app administration.
• Post-Administration: The RA or designated staff member confirms that the participant’s app data has been uploaded.  They complete the S2K validity form according to protocol as soon as possible after the data has been uploaded. The RA or designated staff member ensures that the app was administered properly and, if necessary, follows up with the caregiver to troubleshoot or re-do the app administration.

The following resources were developed to train study staff on remote administration of the S2K app.  The content is applicable for at home, in lab and in clinic administrations.

New study staff who need to be trained on S2K administration should contact sensetoknow@duke.edu for an overview of these materials and training expectations.

This section includes templates for communicating with families about S2K administration.  We recommend you modify these templates to match your research protocol and to provide accurate contact information for your study team.

These FAQs were gathered during our first training cohort and piloting effort.  We will update FAQs as we learn from our participant family experiences.

Coming Soon!

Quality Control Processes will instruct study staff on how to review completed S2K videos for visual and audio quality, complete the S2K validity form, complete quality control documentation.    S2K team will also implement a process for double checking 15% of S2K videos across all studies.