Tag Archives: PROMIS

Patient-Reported Outcomes Workshop Report Available

Clinical outcomes, Clinical trials, Comparative Effectiveness Research, Patient-Centered Outcomes Research, Patient-Reported Outcomes, Pragmatic clinical trials, Research tools, , , , , , , , , ,

Tools for ResearchIn January of 2015, the NIH HCS Collaboratory’s Patient-Reported Outcomes (PRO) Core Group convened a 2-day workshop in Baltimore devoted to identifying barriers and possible solutions to the use of NIH-supported PRO tools in comparative-effectiveness research (CER).

Findings from the meeting, which include case study presentations and reflections from multiple stakeholders representing the research, clinical, and patient communities, were distilled into a summary document available from the NIH Collaboratory Knowledge Repository at the link below:

The workshop summary is also available on the Living Textbook’s “Tools for Research” section, under “Patient-Reported Outcomes White Paper.”

Computer Adaptive Testing Approach to Patient-Reported Outcomes

Electronic health records, Patient-Reported Outcomes, Research tools, , , , , , , , , ,

Michael Bass and Maria Varela Diaz of the Department of Social Sciences, Feinberg School of Medicine, Northwestern University, have kindly given the Living Textbook permission to post their presentation (link opens as a PDF) about how to use an application programming interface (API) to create a computer adaptive testing (CAT) program that integrates patient-reported outcome (PRO) measures with an institution’s electronic health record (EHR) system.

With a CAT approach, PRO assessment can cover a wide range of question/response items with increased precision. In their CAT application, the authors describe a clinical use case for a mobile health solution, using measures from the NIH-sponsored PRO Measurement Information System (PROMIS®) domain framework, in which a health assessment is issued by a physician, administered to a patient via phone, and then sent back to the EHR.

You can read more about CAT in the Patient-Reported Outcomes chapter of the Living Textbook.