Children with any Myelodysplasia diagnosis such as myelomeningocele, lipomeningocele, tethered cord, disastematomyelia and even children with spinal cord injuries can be seen in Duke’s multidisciplinary Myelodysplasia Clinic which offers coordinated care from the medical, surgical and allied health specialists covering the clinic. In addition to the clinic, physical therapy and occupational therapy staff provide evaluation and treatment in our inpatient and outpatient programs to address joint deformity and muscle tightness, motor development, balance and equilibrium, weakness, mobility and daily living function. Our pediatric physical and occupational therapists are very experienced with splinting, bracing and selecting adaptive equipment in addition to their expertise with strategies to maximize the child’s strength and postural control, reduce the risk of musculoskeletal problems, and improve coordination of movement to optimize the child’s functional skills. We work closely with the family and collaborate with the child’s medical team and community caregivers to develop a plan of care designed to enable the child to participate in activities at home, school, and in the community.
Spina bifida information page compiled by the National Institute of Neurological Disorders and Stroke
Bridge 2 Sports (non-profit organization that creates opportunities for children and adults who are physically challenged to play team and individual sports by providing equipment, developing sport teams and coaching, thereby helping them discover tenacity, confidence, self-esteem and the joy of finding the player within)