The LMNA Cardiac Disease Network is a European-based platform that brings together various LMNA experts, leaders, and patients to accelerate research and development for treatments for LMNA-related cardiac disease.
The Sudden Arrhythmia Death Syndrome (SADS) is a US-based foundation that raises awareness for SADS warning signs, enhance patient and family support, expand education to healthcare professionals, and increase advocacy for research, screening, and medical treatment.
The Dilated Cardiomyopathy foundation US-based organization that aims to provide hope and support to DCM Patients and Families with Dilated Cardiomyopathy through education, research and advocacy.
CCF is a US-based organization focused improving the critical need for more research and education on pediatric cardiomyopathy, a chronic and potentially life-threatening heart disease.
The Leducq Foundation is a European-based organization that strives to educate young researchers, develop long-term collaborative relationships, and foster innovation in cardiovascular and stroke research, in order to change the way that patients with cardiovascular and neurovascular disease are diagnosed and treated.
PRIORITY is a 5-year study funded by the Leducq Foundation in an effort to determine the genotype-phenotype relation in LMNA-DCM, identify the underlying pathophysiological pathways, and to develop novel, mechanism-based treatments, including both personalized and broadly applicable approaches.
