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Discussion Topics and Assigned Readings

Series Objectives:

  1. Summarize ethical, legal and social topics associated with genome sciences and medicine research.
  2. Identify viewpoints from multiple stakeholders on these ELSI topics.
  3. Apply lessons learned to ongoing and future research.

2019-2020 Schedule

Sept 27: Introduction/History of ELSI

Oct 31: Informed Consent for Research: Broad Consent

Nov 21: Biobanking

Feb 14: Privacy and Challenges of de-identification

Mar 13: Issues Raised with Gene Editing Technologies

Apr 10: GINA (Genetics Information Non-discrimination Act)

May 8: Secondary Findings/Sequencing